News and Blog

News and Blog
Blog

Date:
07-04-14

Author:
Empower

A message from Claire Halpin

A message from Claire Halpin

Claire Halpin, widow of Empower founder Les Halpin, conveys her thanks to those who came together for the manifesto launch on 25th March. Claire only wishes Les had been there to see the huge step taken with the Early Access Scheme.

News

Date:
28-03-14

Author:
Empower

Earl Howe - Empower’s Parliamentary Reception speech

Earl Howe - Empower’s Parliamentary Reception speech

Health Minister, Earl Howe, delivered a keynote speech at Empower’s Parliamentary reception on 25th March 2014. Here’s his speech in full.

News

Date:
27-03-14

Author:
Empower

Show your support!

Show your support!

Patient organisations believe that their voice and engagement would make major, positive changes to priorities at several stages in the medical innovation process.

Events

Date:
25-03-14

Author:
Empower

Put patients at the heart of medical innovation – Parliamentary Reception

Put patients at the heart of medical innovation – Parliamentary Reception

On Tuesday 25th March the Empower: Access to Medicine campaign were joined by Health Minister Earl Howe, patients, families, campaigners and biotechs for a hugely successful lobby of parliament.

News

Date:
14-03-14

Author:
Empower

Early Access Scheme

Early Access Scheme

It’s a huge day for Empower: Access to Medicine as the Government have now committed to an Early Access Scheme adopting many of the measures proposed by Empower. There are challenges ahead, but this is a huge step on the road to progress for patients!

Blog

Date:
26-02-14

Author:
Empower

What bad forecasts say about pharmaceutical and biotech Innovation

What bad forecasts say about pharmaceutical and biotech Innovation

Dr Jack Scannell, an independent consultant and former pharmaceutical market analyst, writes about the unpredictability of forecasting the success of a new drug.

Events

Date:
12-02-14

Author:
Empower

Call to Action

Call to Action

We need to demonstrate to the Government and Parliament that this is more than a policy issue; the lack of progress in drug development affects real people and real lives. 

That is why we are hosting a lobby of Parliament on 25th March in the House of Commons 4pm-6pm. We are looking for patients, and/or their families, to attend with their constituent MP so that we can get this issue onto the agenda of backbenchers.

Events

Date:
22-01-14

Author:
Empower

Promising developments on early access to medicines in the UK

Promising developments on early access to medicines in the UK

Steve Bates, CEO of the BioIndustry Association, writes about Empower’s meeting with Health Minister Earl Howe. Steve was one of a number of delegates debating the key barriers to drug development and early access for patients.

Blog

Date:
09-01-14

Author:
Empower

Why are fundamental diseases important to medicine?

Why are fundamental diseases important to medicine?

The excellent research and campaign group, findacure, explain why fundamental diseases are so important to medicine; and invite you to join them for an exclusive workshop.

Blog

Date:
02-01-14

Author:
Empower

Getting ahead for those with rare diseases – The UK Strategy for Rare Diseases

Getting ahead for those with rare diseases – The UK Strategy for Rare Diseases

Leela Barham, an independent health economist, writes our first blog of 2014 on the Government's recent Strategy for Rare Diseases.

News

Date:
03-12-13

Author:
Empower

December Newsletter

December Newsletter

The latest newsletter from the Empower: Access to Medicine campaign.

Blog

Date:
03-12-13

Author:
Empower

Research and licensing medicines: the funder’s perspective

Research and licensing medicines: the funder’s perspective

This week our blog page features an article by  Dr Brian Dickie, Director of Research Development at the MND Association, in which he looks at how drug trials are designed.

Events

Date:
13-11-13

Author:
Empower

Empower wins Health and Wellbeing Award at PRCA Awards

Empower wins Health and Wellbeing Award at PRCA Awards

Empower: Access to Medicine won a Highly Commended Award, in the Health and Wellbeing category, at last night’s PRCA Awards.

News

Date:
08-11-13

Author:
Empower

Guardian Obituary

Guardian Obituary

Geoffrey Clifton-Brown, Les' local MP, has wirtten an obituary for the Guardian website.

Events

Date:
25-10-13

Author:
Empower

Empower shortlisted for public relations award

Empower shortlisted for public relations award

The Empower: Access to Medicine campaign has been shortlisted for a national public relations award

News

Date:
16-09-13

Author:
Empower

Les Halpin 1957-2013

Les Halpin 1957-2013

We are saddened to announce that Les Halpin has passed away, aged 56.

If you would like to donate to the campaign please transfer your donation to Empower using the following details:

Account number: 63486087
Sort: 20-65-82
Reference: 33879/1

Cheques can also be made payable to Empower: Access to Medicine

Events

Date:
09-09-13

Author:
Empower

Pathways to Progress

Pathways to Progress

Empower: Access to Medicine releases its first policy report Early Access to Medicine - A Year On

News

Date:
08-09-13

Author:
Empower

Empower: Access to Medicine supports the Medical Innovation Bill

Empower: Access to Medicine supports the Medical Innovation Bill

Empower: Access to Medicine supports Lord Saatchi's Medical Innovation Bill

News

Date:
08-09-13

Author:
Empower

A summary of our first policy report - A Year On

A summary of our first policy report - A Year On

Empower: Access to Medicine will be releasing its first policy report looking at the barriers to drug development.

Blog

Date:
27-08-13

Author:
Empower

Like a needle in a haystack: recruiting patients for a rare disease clinical trial

Like a needle in a haystack: recruiting patients for a rare disease clinical trial

Hana Ayoob, Oliver Timmis and Nick Sireau of the AKU Society write about the practicalities of designing clinical trials. 

News

Date:
22-08-13

Author:
Empower

August Update Newsletter

August Update Newsletter

The latest newsletter from Access to Medicine founder, Les Halpin.

Blog

Date:
16-08-13

Author:
Empower

Safety First? How the Current Drug Approval System Lets Some Patients Down

Safety First? How the Current Drug Approval System Lets Some Patients Down

Julian Savulescu,Uehiro Chair in Practical Ethics Director, Oxford Uehiro Centre for Practical Ethics, University of Oxford, writes an excellent blog exploring the ethics of drug approval

Blog

Date:
21-06-13

Author:
Empower

NICE approach to assessing orphan and ultra-orphan drugs – details are now emerging

NICE approach to assessing orphan and ultra-orphan drugs – details are now emerging

Health Economist, Leela Barham, explains NICE's approach to assessing drugs for orphan and ultra-orphan diseases. 

Date:
14-06-13

Author:
Empower

June update newsletter

June update newsletter

This week Empower has been referenced in two parliamentary debates regarding the  drug development process.

Blog

Date:
05-06-13

Author:
Empower

A clearer picture for clinical trials

A clearer picture for clinical trials

Les Halpin writes about last week's crucial vote, in the EU Parliament, on Clinical Trials 

Events

Date:
03-06-13

Author:
Empower

Parliamentary Summit, 15th April 2013 - Video and Transcript

Parliamentary Summit, 15th April 2013 - Video and Transcript

On 15th April a panel of academic, political, pharmaceutical and patient experts gathered in Parliament to to start the consultation process for the Halpin Protocol. You can watch a video of the summit and read the transcript here...

Date:
13-05-13

Author:
Empower

A Wholehearted Thank You

A Wholehearted Thank You

Les Halpin's latest newsletter to Empower: Access to Medicine supporters.

Date:
02-05-13

Author:
Empower

Doing nothing is doing harm

Doing nothing is doing harm

Oli Rayner, a patient advocate with Cystic Fibrosis, writes about clinical trials and his support for Les Halpin’s campaign.

Date:
29-04-13

Author:
Empower

Battling The System At Every Turn

Battling The System At Every Turn

As part of a Sky News piece on the Drury's battle with accessing vital cancer drugs for their daughter, Les Halpin wrote a special piece for the Sky News website. 

Date:
23-04-13

Author:
Empower

The Halpin Protocol

The Halpin Protocol

Les Halpin writes about the launch of the Halpin Protocol; a blueprint framework for patients suffering from certain life-threatening diseases. It would allow patients to make their own informed choices about the risks of participation in Clinical Trials or taking drugs and therapies originally intended for other conditions.

Date:
19-04-13

Author:
Empower

Parliamentary Summit Coverage

Parliamentary Summit Coverage

Geoffrey Clifton-Brown MP hosted the Empower: Access to Medicine Parliamentary Summit on Monday 15th April. The summit has received significant media coverage at both a local and national level.

Date:
17-04-13

Author:
Empower

Empower: Access to Medicine Parliamentary Summit

Empower: Access to Medicine Parliamentary Summit

A panel of academic, political, pharmaceutical and patient experts gathered in Parliament this week to to start the consultation process for the Halpin Protocol.

Date:
22-03-13

Author:
Empower

Given the Chance

Given the Chance

Lindy Jones, Author of The Voice in My Head is Perfect, writes about her diagnosis with MND and her experience of taking part in a drug trial.

Date:
08-03-13

Author:
Empower

Dr Edward Jenner

Dr Edward Jenner

Les Halpin looks back at the pioneering work of Dr Edward Jenner in his search for a vaccine against smallpox.

Date:
28-02-13

Author:
Empower

How the blame culture limits chances for sick people

How the blame culture limits chances for sick people

International journalist, writer and commentator Lois Rogers writes about how the blame culture limits chances for sick people.

Date:
22-02-13

Author:
Empower

Right to Try

Right to Try

Les' Halpin writes about the amazing coverage the campaign has recently received.

Date:
15-02-13

Author:
Empower

Empower: Access to Medicine launches Facebook page

Empower: Access to Medicine launches Facebook page

Empower: Access to Medicine has launched a Facebook page called ‘Right to Try’ to involve the patient voice in its campaign to accelerate the process of drug development and improve access to medical drugs for people with rare and life-threatening conditions.

Date:
15-02-13

Author:
Empower

Empower: Access to Medicine on the BBC Radio 4’s Today Programme

Empower: Access to Medicine on the BBC Radio 4’s Today Programme

Les Halpin has been interviewed by John Humphrys on BBC Radio 4’s Today Programme about giving people with rare, life threatening conditions the right to try unlicensed drugs.

Date:
14-02-13

Author:
Empower

Empower: Access to Medicine launches e-petition

Empower: Access to Medicine launches e-petition

Les Halpin has set up an e-petition to raise support for those with rare, life threatening serious conditions for which there is no satisfactory treatment currently available. 

Date:
10-02-13

Author:
Empower

Empower: Access to Medicine in the Sunday Times

Empower: Access to Medicine in the Sunday Times

Les Halpin has been inteviewed by Sunday Times journalist, Lois Rogers, on his drive to improve access to medicine 

Date:
08-02-13

Author:
Empower

Open to all

Open to all

Les Halpin has written a blog welcoming the GlaxoSmithKline decision to publish the data on all drug trials conducted by the company since its foundation.

Date:
04-02-13

Author:
Empower

Treatable, not terminal illnesses

Treatable, not terminal illnesses

Geoffrey Clifton-Brown MP has written an article for Politics Home's Central Lobby.

Date:
28-01-13

Author:
Empower

NHS Constitution Consultation

NHS Constitution Consultation

Empower: Access to Medicine has made a submission to the public consultation on the NHS Constitution. Empower welcomes the opportunity to make a submission to the Consultation and was particularly encouraged by the commitment to further invlove patients in their treatment.

Date:
28-01-13

Author:
Empower

Pharma Times - Westminster Hall Debate

Pharma Times - Westminster Hall Debate

Pharma Times, one of the UK’s Leading pharmaceutical and health publications, has run a news story in their online edition following the Westminster Hall debate on access to medicine for people with terminal illnesses http://bit.ly/UpFYgl and leads on Empower: ATM’s call for more patients to become involved in campaigning for change

Date:
22-01-13

Author:
Empower

Westminster Hall Debate - Access to medicine for people with terminal illnesses

Westminster Hall Debate - Access to medicine for people with terminal illnesses

Geoffrey Clifton-Brown MP led a debate in the House of Commons calling upon the Government to urgently accelerate the speed at which patients with rare and life threatening illnesses can access drugs (9.30am, Wed 23rd Jan)

Blog

Date:
11-01-13

Author:
Empower

The Drug Test

The Drug Test

This week’s  Times leader 'The Drug Test' (10th January 2013) goes to the very heart of the issue that Empower is campaigning for - transparency.

Blog

Date:
02-01-13

Author:
Empower

Professor Lachmann writes about the complicated world of drug litigation

Professor Lachmann writes about the complicated world of drug litigation

Drug development is hugely expensive, which means that only large companies with deep pockets can develop them. Professor Lachmann explains the litigation system that drives up those costs.

News

Date:
21-12-12

Author:
Empower

December Empower Newsletter

December Empower Newsletter

I would like to take this opportunity to thank you for all your support this year; I have been truly overwhelmed by how much progress the campaign has made. The last month has been particularly busy for us and I would like to share with you some highlights.

News

Date:
21-12-12

Author:
Empower

CASMI Supports Empower Campaign in House of Lords

CASMI Supports Empower Campaign in House of Lords

The issue of slow drug development and lack of approvals for new medicines, particularly in neurology, was recently raised in parliament. CASMI’s support for The Empower: Access to Medicine campaign was announced and we will continue to strive towards creating a more productive environment for new treatments for neglected diseases.

Blog

Date:
13-12-12

Author:
Empower

Geoffrey Clifton-Brown MP writes about plans to map the DNA of over 100,000 people

Geoffrey Clifton-Brown MP writes about plans to map the DNA of over 100,000 people

Recent announcements on the UK Life Sciences Strategy and plans for mapping the DNA of over 100,000 people with rare diseases marks a significant step in the quest for new treatments. However, as Geoffrey Clifton-Brown, Les Halpin’s Constituency MP, writes it is not the whole story.

Blog

Date:
07-12-12

Author:
Empower

Baroness Masham writes about why she raised Empower in the House of Lords

Baroness Masham writes about why she raised Empower in the House of Lords

A couple of weeks ago I took part in an important debate in the House of Lords on improving neurological services in the United Kingdom.

It was an opportunity to highlight a neglected subject; one with some alarming statistics that I believe deserves wider attention in Government and policy circles.

Blog

Date:
27-11-12

Author:
Empower

Access to orphan medicines: rare expertise and patient experience needs to be core part of decision

Access to orphan medicines: rare expertise and patient experience needs to be core part of decision

Orphan medicines are used to treat some of the rarest conditions; conditions that affect less than 5 per 10,000 people in Europe.  Leela Barham, independent health economist and 2020health research fellow talks about the challenges faced in developing new drugs such as cost, knowledge, regulations...

News

Date:
21-11-12

Author:
Empower

Empower: Access to Medicine campaign raised in House of Lords debate on improving neurology services

Empower: Access to Medicine campaign raised in House of Lords debate on improving neurology services

20 November 2012, House of Lords: Baroness Masham of Ilton debated the lack of drug development for patients with rare or life-threatening conditions in a Parliamentary debate. She referred to the Empower AtM campaign and asked the Government what it will be doing to speed up the drug development process.

Blog

Date:
06-11-12

Author:
Empower

Risks and benefits in new medicines. Who should decide?

Risks and benefits in new medicines. Who should decide?

Alastair Kent, Director of Genetic Alliance UK: The pursuit of safety when granting a licence to a new medicine is obviously important. Given that there is no such thing as a completely safe drug, the issue becomes one of establishing whether or not the anticipated health gains for patients are sufficient to outweigh the risks inevitably associated with prescribing a powerful (and potentially somewhat toxic) medicine to a patient with a serious and possibly life limiting disease.

Blog

Date:
24-10-12

Author:
Empower

Les discusses: What is rare?

Les discusses: What is rare?

I was thinking about this the other day when a spot on the TV news talked about a tragic incident where a boy had been struck by lightning outside his school. Rounding up, they said that this was a very rare incident: there were 12 cases of lightning striking individuals in the UK each year of which 3 usually ended in fatalities. I then compared this with my own condition, MND, which is described as a rare disease. Some 5000 people have MND in the UK, and about 1500 die each year. Sounds a lot less rare than being struck by lightning.

Blog

Date:
16-10-12

Author:
Empower

Richard Barker writes about the challenges facing drug development

Richard Barker writes about the challenges facing drug development

The Access to Medicine campaign is a unique one, created for patients by patients.

Blog

Date:
03-10-12

Author:
Empower

Being diagnosed with Motor Neurone Disease

Being diagnosed with Motor Neurone Disease

Since being diagnosed with Motor Neurone Disease in May 2011, I have done a huge amount of research on the Internet and talked to as many experts as I could find in order to understand the disease that is probably going to kill me.

News

Date:
01-10-12

Author:
Empower

Patients with rare diseases call for radical change in drug development

Patients with rare diseases call for radical change in drug development

Patients with rare, life threatening genetic conditions should be given greater powers to take part in clinical trials and have earlier access to medicines, according to a new campaign launched in the UK.

Events

Date:
17-09-12

Author:
moresoda

Empower: Access to Medicine debate minutes

Empower: Access to Medicine debate minutes

Empower: Access to Medicine debate - 12 September 2012 - The King’s Fund, London

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