‘Empowering patients, policy makers, academics and the pharmaceutical industry to change the drug development process in order to speed up the delivery of life-saving and life-enhancing medicines to people with life-threatening and rare illnesses.’
By facilitating expert debate and discussion, online collaboration and sharing of best practice, the campaign aims to raise the issue of earlier access to medicine higher up both the political and media agenda.
Put patients at the heart of medical innovation
Patient organisations believe that their voice and engagement would make major, positive changes to priorities at several stages in the medical innovation process.
We are calling on the Government and political parties to unite behind a medical innovation manifesto for patients, to implement a programme that will see patients having a greater voice in their treatment, and to develop more adaptive pathways for clinical research and medical innovation.Show your support on Change.org
Leela Barham, a health economist, writes our latest article examining the progress of the Early Access to Medicines Scheme (EAMS). Her piece comes ahead of a pending roundtable discussion (26 November) at the Royal Society of Medicine featuring a number of expert commentators including the new President of the RSM, Babulal Sethia.Read more
The Four Campaign Pillars
To allow patients with life-threatening illnesses to access drugs for their condition which have already been approved for other conditions.
To enable drugs to be developed more quickly for terminal illnesses
For all terminal, life-threatening and seriously life-encroaching conditions
In encouraging medical research & development (R&D) to extend into minority conditions that are terminal, life-threatening and seriously life-encroaching