‘Empowering patients, policy makers, academics and the pharmaceutical industry to change the drug development process in order to speed up the delivery of life-saving and life-enhancing medicines to people with life-threatening and rare illnesses.’
By facilitating expert debate and discussion, online collaboration and sharing of best practice, the campaign aims to raise the issue of earlier access to medicine higher up both the political and media agenda.
HM Government e-petition
We believe that people with terminal rare diseases should have the right to test drugs in clinical trials earlier than is currently allowed. Please help us to raise awareness by signing on the Government’s official e-petition website. We have more power in numbers and can make a difference together.Sign the e-petition
Dr Jack Scannell, an independent consultant and former pharmaceutical market analyst, writes about the unpredictability of forecasting the success of a new drug.Read more
The Four Campaign Pillars
To allow patients with life-threatening illnesses to access drugs for their condition which have already been approved for other conditions.
To enable drugs to be developed more quickly for terminal illnesses
For all terminal, life-threatening and seriously life-encroaching conditions
In encouraging medical research & development (R&D) to extend into minority conditions that are terminal, life-threatening and seriously life-encroaching